As a nutrition expert, it should be up to me, the family and the healthcare team to decide on how best to treat these children and if nutrition is the ideal treatment, then it should be included as part of the child's covered treatments. It is frustrating to have to delay or change care if nutrition therapy is not covered. This can worsen illness and also cause undue stress and harm to the child and their family.
As a Registered Dietitian who works in a pediatric outpatient gastroenterology and nutrition office, I routinely work with children ...
My son has classic PKU and his food options are very limited. We rely heavily on medical foods to fulfill his dietary needs. It is a ...
Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...
My son has eosinophilic gastritis and esophagitis. His foods are very limited and he basically lives off chicken breast and rice. Even ...
Our sweet Gavin’s future depends on this crucial coverage. Without insurance coverage for his food & formula, we would be unable ...
It would relieve a lot of stress and tension in our household. Having to pay out of pocket for my son’s formula has brought me to ...
My daughter was born with PKU, a rare metabolic disorder. Right now, we are lucky to have insurance cover her formula and medical ...
My son is only 4. He has a whole life of this expensive cost of life, that he had no choice to live, to hover over him forever. He has ...
My son who is 15 months old was born with PKU. We have Cigna insurance which covers ZERO low protein medical foods and only covers a ...
Isabelle has Classic PKU. She is 2.5 years old and can have 3 grams of natural protein per day. For context, one 8 oz glass of milk ...
Our family has been fortunate enough to have very good insurance coverage through an employer which provides 90% coverage for medical ...
My insurance provides coverage of Ashlynn’s PKU metabolic formula, ONLY after we have met her deductible. They cover NO medical ...