Camden, Age 10

Our adopted son was diagnosed with isovaleric acidemia at birth. This is an incurable disorder that can be managed with a low-protein diet and supplementation of essential amino acids with a special formula, manufactured only by Abbott Laboratories. Without this

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Amber

I was born in 1990 with PKU. My parents were told to expect severe disabilities. We need these medical foods for our everyday lives. The prices of these foods are outrageous $11.49 for ONE box of medical pasta. These medical

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Ben, Age 5

Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 deductible. We are approximately $15,000 in each year right of out the gate. I believe

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Lisa, Age 6

We adopted Lisa last year. Prior to that she was in Florida. Due to the low amount covered in Florida Lisa was on a very limited diet. Once we brought Lisa home to Indiana we had no coverage for food.

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Marisa, Age 10

Our 10 year old daughter Marisa has Phenylketonuria (PKU). She is only able to have 5 grams of protein a day from regular foods. She gets 40 grams of equivalent protein from her medical formula a day. She does not

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Jessica

Our daughter has even told her dad and I that she thinks at this point, she will choose not to have children due to the cost of her medical foods!

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The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.