Brielle, Age 12

There are a lot of difficulties that come with having a metabolic disorder. Our society revolves around food, and daily accommodations/restrictions must be figured out for family meals, social gatherings, school functions, etc. My daughter is hungry often because of

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Liam, Age 5

Liam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried to start introducing solid foods. His pediatrician told me time and time again that we just needed to

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Sabastian

It is really hard to have a child with a metabolic disorder. I pay over $600.00 per month for insurance coverage, It was prior to Obama Care $1200.00 per month. This does not leave me much funds left over to

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Pamela

It would mean so much to have the medical nutrition equity act passed. I have a diagnosis of homocystinuria which was discovered very late in life. I have suffered from strokes and blood clots in my lungs because of it.

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The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.