Armando, Age 2
EOSINOPHILIC DISORDERS · FloridaAnnual cost: $18000
My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His ...
My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His ...
My son’s food allergies were so severe, he was reacting to the food I was eating through breastfeeding. He had blood in his ...
I am aware that we are some of the lucky ones in that we have great medical coverage via TRICARE. Others should be afforded the same opportunity for coverage
Evan was born with MSUD and we were lucky that TRICARE covered his formula and supplements until his transplant. At the time, they did ...
At 1.5 years old she weighed 14 pounds and had g-tube surgery. She's 3 now and has never eaten food.
Our beautiful happy and energetic three year old daughter Danielle was born at 35 weeks New Year’s Day 2016. She was diagnosed at ...
Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue ...
Hi, I am only 5 years old now and my parents struggle to provide the right food for me for my special diet. Coverage would mean now ...
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
The biggest frustration as a provider is knowing that many patients are not receiving the care they need to manage their conditions. The second biggest frustration is that even when an insurance “covers” medical foods, it may still not be obtainable since many ‘in-network’ distributors will not supply the needed products.
Coverage of medical foods is a large part of my practice in both my time-effort and my care recommendations for patients. For every ...
My daughter was diagnosed with a genetic inborn error of protein metabolism at 15 months of age. Since that time, our daily life has ...
We are a poor family. Aside from food stamps we don’t have anything else to help with regular food let alone medical food. over ...
I’m almost 55 with PKU need I say more… okay was a sample for Kuvan and Lanephex. Amount others like 1st Pku camps!
I’m almost 55 with PKU need I say more… okay was a sample for Kuvan and Lanephex. Amount others like 1st Pku ...
The average child eats what everyone else eats and thrives based upon a combination of nutrition, exercise and genetics. While we can ...