Not having to worry about paying for medical nutrition would be a huge relief to our family. NO family should have to pay for these things, or should at least have the support of their insurance company! This is a
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Brooks, Age 9 monhts
My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He was also diagnosed with a cows milk protein and soy protein allergy, then
Read moreAudrey, Age 12
![Audrey, Age 12](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/20201123_051115.jpg)
Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it affects my daughter’s growth and development is critical. For 12 years, we have cycled through and fought with
Read moreLily Jo, Age 6
![Lily Jo, Age 6](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/inbound8126629176851339365-scaled.jpg)
I just want Lily Jo to be able go to school and eat lunch like the rest of the children. I want to know that once again someone doesn’t understand or miss read the list of instructions for the food
Read moreEliot, Age 11
![Eliot, Age 11](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/Eliot_Wilkinson.jpg)
This is Eliot and he has PKU. With formula, low-protein foods and an incredible amount of discipline on his part, Eliot is a happy, healthy, thriving 11-year-old. He is a talented swimmer too, having achieved a Junior Olympics time standard
Read moreRonan, Age 2
![Ronan, Age 2](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/9B7C2601-F320-4DBE-B4D9-86CA0EC4400D-scaled.jpeg)
My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure to thrive for the first month of his life. Once I realized at
Read moreIsaac (13) and Caleb (11)
![Isaac (13) and Caleb (11)](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/2E28236D-8B21-4BF2-A693-B375C3F28D34.jpeg)
Over the course of five years, our out-of-pocket expenses for medical nutrition for two children was approximately $85,000. Add to it the higher cost of specialty food that they had to eat because it was medically necessary due to ingredient
Read moreRylan, Age 10
![Rylan, Age 10](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/49CF21FB-A83E-4328-BEDE-24074FF2AFB1-scaled.jpeg)
Being able to access medical formula is absolutely necessary for my family. My 10 year old son gets 1/3 of his nutrition from Neocate Splash at the moment. We originally tried the top six elimination diet but unfortunately my son’s
Read moreSawyer, Age 2
![Sawyer, Age 2](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/B2A71845-ACC0-4545-AB71-DC82F4B41988-scaled.jpeg)
We spent a long time working with my son’s doctors to make insurance understand how much he needed hypoallergenic formula. He was officially diagnosed failure to thrive at 2 months. He was diagnosed with significant GERD at 4 months. He
Read moreKatherine, Age 8
![Katherine, Age 8](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/MBB_7391-Edit-2-ZF-3555-35627-1-001-018-scaled.jpg)
Katherine was only 2 months old when we knew something wasn’t right. It took us 8 more months to figure out what was going on. No baby formulas would work for her. Not regular formula, not soy formula, not even
Read moreYazmin, Age 2
![Yazmin, Age 2](https://nutritionequity.org/wp-content/uploads/sites/12/2021/06/65715793-F6A7-4613-BFAC-51A338BDD7A3-scaled.jpeg)
Yazmin was four days old when she was diagnosed with mild PKU. She’s been allowed most things except for meat, she still requires formula daily. We work effortlessly daily to try and provide meatless options for our girl which has
Read moreSebastian, Age 25
Medicare always denying coverage, constant. Medicare is very poor. EOB’s need improvements. I have a son that needs medical nutrition and without it he would have passed away years ago. Medicare always denying coverage, constant. Medicare is very poor. EOB’s
Read moreCamden, Age 10
![Camden, Age 10](https://nutritionequity.org/wp-content/uploads/sites/12/2021/05/2021-01-02_17-58-02-1-studio-scaled.jpg)
Our adopted son was diagnosed with isovaleric acidemia at birth. This is an incurable disorder that can be managed with a low-protein diet and supplementation of essential amino acids with a special formula, manufactured only by Abbott Laboratories. Without this
Read moreLucas, age 18 months
![Lucas, age 18 months](https://nutritionequity.org/wp-content/uploads/sites/12/2021/05/20210514_074626-scaled.jpg)
While we are fortunate that wic and insurance cover Lucas’s formula because of his medical necessity as well as my persistence with insurance and Drs filing out the right things, etc, many families have a lot of trouble finding help
Read moreGrayson, Age 2
![Grayson, Age 2](https://nutritionequity.org/wp-content/uploads/sites/12/2021/03/80F71D46-1562-4739-B0A0-18A4D843CE05-scaled.jpeg)
Grayson needs to take an injection of a specialty compounded form of B12 called Hydroxocobalamin. Our insurance through my husbands employment and Medicaid do not cover compounded medication. Without this medication he would suffer from seizures, brain atrophy, vision loss,
Read moreSienna, Age 22
![Sienna, Age 22](https://nutritionequity.org/wp-content/uploads/sites/12/2021/03/inbound7774409016242580870.jpg)
When my daughter Sienna was 3 months old she was diagnosed with a rare metabolic disease called mma-cblc. This disease prevents her from processing b-12 correctly or breaking down protein correctly. She was in the NICU & very critical before
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