I have been on medical formula for my entire life. I am coming up on my 21st birthday and still have only been able to conquer one microwaved potato a day. My doctors tell me I’ll be formula relied for the rest of my life. Seeing my mother work two jobs, and me working a nearly full time job while in college just to make sure that I can stay alive every month, waiting until the last possible minute to order the medical formula so we can get the money makes me cry to sleep. I hate seeing my mother work her life away to keep me afloat and me as well trying to pursue and education while everyone else doesn’t have to worry whether or not they can pay for their groceries or $3 McDonald’s meal. Paying thousands upon thousands a month, just because we can’t find anyone that will give us anymore than a couple hundred dollars a month unless I’m in a feeding tube. I have spent days and long nights contemplating the procedure not because I needed it. But because we can’t pay for my own “food”. I don’t want my family to suffer because I can’t get better quicker. I have fought doctors my entire life that tried to force me to get a feeding tube and told me I would never be able to do anything except be bed rotten. Now I play sports and lift weights when they told me I’d have problems walking just despite them. The one mountain I can’t climb however is the mountain of loans and money I need to survive to fight. I don’t want them to win I want to be like everyone else. It is so unfair and stressful knowing that if I can’t get an amazing job after my education, that might be my demise because I can’t afford my medicine.
- Sebastian, Age 25
- Color of Crohn’s and Chronic Illness