Ally was diagnosed at ten days with brain growth affecting diet based treatment PKU. She has been a resident of SC since she was six ...
Hi, I am only 5 years old now and my parents struggle to provide the right food for me for my special diet. Coverage would mean now ...
Hello, I am the mother of a ten-month-old phenylketonuria patient. Having more help to get instant needs would be amazing. With having ...
Having medical food coverage would mean that I would not have to worry about double insurance for our daughter, and fighting insurance ...
Our beautiful baby boy Aidan was born last July and shortly thereafter diagnosed with PKU. Once we learned he could grow and develop ...
Having the medical nutrition covered by our insurance would grealty imporve the options and the cost of the food that Clayton would ...
If Brandon was able to get his medical food covered we would take advantage of ordering from Cambrooke foods company more often. His ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
We have spend hundreds of hours on the phone, writing letters and working with her doctors for our insurance to provide the medical nutrition needed for Ellis to stay at her healthiest.
We have been fighting insurance and coverage since Ellis was diagnosed. It is very time consummating and difficult to work with ...
My name is Sarah. Im 24 and I have classical PKU which means my enzyme in my liver has a hard time fuctioning breaking down ...
I will begin with saying there are others that are in far greater need of medical nutrition coverage than myself. I have been brought ...
Coverage for medical nutrition for myself would mean freedom from worry and security that I will continue to be my best self. Without ...
Medical Nutrition coverage will ensure my son gets the formula he needs to grow and develop normally. I have been fighting for ...
While we are very fortunate to have insurance that can help us with the costs, there is still a great financial strain associated with ...
My son has classic PKU and his food options are very limited. We rely heavily on medical foods to fulfill his dietary needs. It is a ...
We have three beautiful children, two of which have PKU. We spend over $120 a month on medical formula, foods, and medication for PKU. ...
Hi, I’m Pat and this is my son, Isaac, and husband/caregiver, David. Isaac is high functioning Autistic. I’m Type 2 ...
We adopted our beautiful daughter Zoe three months ago from China. We did extensive research on PKU and prepared ourselves the best we ...
When I moved to the West Coast by myself in 2014, I had to learn everything on my own like finding a clinic and handling coverage. I ...
When patients' mental health deteriorates because they cannot follow their diet, they often lose their job and get incredibly frustrated with the system.
There are so many patients (especially PKU patients) who would like to improve their health status, including mental health, but ...
The amount of medical debt my family has had to trudge through, during my 43 years of living with PKU, has been financially crippling. ...
Our clinic's desire to bring the best possible care and outcomes to our patients is directly related to their ability to get necessary medical foods. Many who are not able to get medical foods are not able to follow their restricted diets, leading to poor outcomes and disease associated morbidities.
Medical food practice affects our practice in several ways. First, and foremost, our desire to bring the best possible care and ...
Abbey is such an awesome person. She has a heart of gold, great listener and works so hard at everything she does. She loves to dance ...
A young couple with a child with PKU in my care made the difficult decision to move to another state and region where they would be able to depend on full medical food and formula coverage and to afford the cost of just one child with PKU.
Staff time alone is the most major barrier. We are fortunate to have a Metabolic Clinic Manager to keep on top of all the insurance ...
My biggest frustration with the lack of coverage of medical foods is that these are NOT foods like those that we purchase from our grocer, they ARE medical treatments just like medications. The party with the condition CANNOT be healthy without them in the exact same manner that a person with diabetes type 1 cannot live without insulin.
As a clinical dietitian in a clinic setting more than 75% of my time was spent managing covering for medical foods. These tasks ...