Washington

Will, Age 14

I am 14. I need my formula to live and grow. I am an athlete and a good student. My formula and low protein foods are critical for my brain and body.

Medical Nutrition coverage will ensure my son gets the formula he needs to grow and develop normally. I have been fighting for accurate formula coverage his entire life. The insurance issues have not been resolved and he is almost 5.

Jennifer

pkunews

The amount of medical debt my family has had to trudge through, during my 43 years of living with PKU, has been financially crippling. I am grateful for medical foods, they allow me to be a valuable citizen, and member

Michelle

I was able to carry two successful pregnancies to term and have to very healthy children as a result of having coverage of medical food coverage. Without medical food coverage, my life would not have been the same.

Sarah, Age 50

I am one of the oldest patients in the PNW. My parents were told to put me in an institution but they said no and found a pediatrician that put me in the first clinical trial for treatment of PKU.

It scares me to think about our daughter not having access to her medical formula. This isn’t an option for her, her life depends upon it and cost shouldn’t be a barrier for her or anyone living with a metabolic

I have two boys with Phenylketonuria, ages 5 and 3. We moved recently from California to Washington state. In California we had state insurance coverage and it covered foods like pasta, bread mix, cake mix, tortillas. In Washington insurance companies

I recently became ineligible for the Medicaid insurance I was on, I make just a little over the cap for income to be eligible. While I was on this insurance, my Formula supplement was covered but medical foods were not

My story is a sad one. I am a parent of a PKU individual. My son was born June 17, 1985, diagnosed with PKU at 3 weeks of age. He was immediately started on a PKU formula and progressed to

Washington

Will, Age 14

Johnny, Age 4

Jennifer

Michelle

Sarah, Age 50

Indigo, Age 5

Aiden and Aaron, Ages 5 and 3

Christopher

Jordan