Jessica, Kacey, and Hailey

Having coverage for medical nutrition would mean everything to our daughters. They have had to take jobs because of the insurance alone. One will be coming off of our insurance in two years and she is already worried about what

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Joseph

Medical nutrition, including my medical drink, has allowed me to function for 26 years in the construction industry as a Project Manager and Estimator as well. This coverage would allow me to continue to function in this capacity and not worry about my health impacting my ability to provide for my family.

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Sadie, Age 12

My daughter’s formula is currently covered. This formula allows my daughter’s brain and body to remain healthy. It allows her to thrive in school and in the activities she is interested in. Sadie even competes in rodeo! She is an

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Kacie

My kids have been on their diet their entire lives (we have three kids with PKU) and now at a crucial time (maternal age), she can not obtain her medical food. She’s is tired, has headaches, feels like she is

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Avery, Age 3

Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery requires due to so many severe conditions. Due to the fact that Avery supplements diet with Elecare

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KE, Age 16

I am a city worker. The free insurance didn’t cover feeding tube supplies or formula. So I had to switch to an insurance I had to pay for each check. If this bill were passed I could switch back to

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Norah, Age 4

When Norah was just 5 days old, we received a call from our clinic saying that Norah had something called PKU. At the time, we had never heard about PKU and did not know what the future would hold for

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Emily, 11

My insurance as a NYC public school teacher covers Emily’s medical formula only. But it is never easy. Every year there is a question if they will continue to cover it. They do not cover any medical food ever. I

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New York Teen, 17

My greatest worries are what happens if my husband’s job comes to an end and we can’t afford the medical formula/foods or can’t afford insurance. More importantly, what happens when my son has to start taking care of these expenses himself.

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Ethan

Ethan has tyrosinemia and cannot eat a regular diet. He is restricted on the amount of protein he is able to consume on a daily basis, meaning we need to purchase food and formula to meet his nutritional goals. This

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Zoey, 15 months

Our daughter must take a medication twice a day, drink medical formula and eat special medical foods in order to stay healthy. We are extremely lucky that our insurance covers a large portion but so many families are not as lucky as we are. Medical nutrition IS NOT AN OPTION.

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Josiah

Josiah is an adorable baby boy who lives with his parents and older sister Middletown, New York. His story starts like that of most babies, with a relatively uneventful birth. Though Josiah was jaundiced (a yellowing of the eyes and

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Hannah

We are self-insured. We have had to change health insurances every year for the past several years because the insurance company went out of business, stopped covering our doctors, etc. We have to fight with the insurance companies every time

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Laryssa

Passing this law would mean a lot more money to go around. Better health for me which makes me better for my family.

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Juliana

It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food.

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The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.