Maryland

Ishaq, Age 5

Employer plan claims that metabolic formula is considered food supplement / baby formula and is excluded from plan.

If we had coverage for Josephine’s medical nutrition it would be such a blessing to not only Josephine but to our family. Because we pay so much in medical needs it has prevented us from spending more on foods that

Having coverage for medical nutrition would mean so much to me and my family. As of now, my family pays about $450 out-of-pocket for medical nutrition monthly, this adds up to about $5,400 a year. All of this money going

Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it affects my daughter’s growth and development is critical. For 12 years, we have cycled through and fought with

Kendall

My name is Kendall Temple Jr. and was born in 1966. I was one of every first people diagnosed with PKU in the state of Maryland. There was very little know about how to treat PKU back then and only

Having coverage for medical nutrition would mean I would have access to life-saving foods and formulas without ever having a lapse in coverage. I wouldn’t have to worry about my insurance deciding what’s best for my treatment. It means I

I have been on medical formula for my entire life. I am coming up on my 21st birthday and still have only been able to conquer one microwaved potato a day. My doctors tell me I’ll be formula relied for

Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to survive. Cigna refuses to cover it. And its $800 out of pocket. Employer switched to Cigna who refuses

My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets older. I have no idea how we’ll be able to afford her formula if we

Medical nutrition coverage has significantly reduced the cost and strain on our family’s income for our daughter’s food. We spend hours making her special recipes a week and approximately $150 extra a month in order to buy specific gluten free

I am 36 years old and was diagnosed with PKU when I was 14 days old. At the time may parents were told that I could be taken off the diet at age 18 and that I might not be

I am a subscribed member to the largest employer sponsored health insurance program in the country, the Federal Employee Health Benefits Program (FEP) worth 50 billion dollars. My prescription benefit – which covered my prescribed medical food for PKU –

Maryland

Ishaq, Age 5

Josephine, Age 6

Emeline

Audrey, Age 12

Kendall

Kurt

Shane

Caroline, age 18 months

Harper, 18 months

Alice, 1

Jessica, Age 36

Jennifer