When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while paying $3,000/month on medical food. Three of my gastroentelogical conditions are Eosinophilic esophagitis, gastropoeresis, and diffuse esophageal spasm. This hypoallergenic fórmula is very expensive and is my only option for nutrition before needing to use my veins. My doctor wants to avoid that due to genetic condition. I am a disabled single mother. I have been using marketplace insurance. I was grateful to learn this week that in my state, Medicaid will pay as per present policy. I would like to remarry someday. The way the laws stand, I am not at liberty to find a partner without the stress of wondering if I will be able to sustain life upon marriage. I know of too many companies that are not paying, so I do not feel free enough to pursue dating at this time. (I’m Christian, so for me, not marrying also means celibacy). Please provide nutrition equality to patients like me. Give me the freedom to improve my circumstances actively. I was in the marketplace and now have adult expansion Medicaid as of this week. I heard they’ll pay. I haven’t received any orders billed to them yet or statements. The attached picture is of me with a past nasal tube, since my surgical tube doesn’t leave much to see under my clothing.
- Tyler, Age 7
- Colton, Age 6