Elsie, Nearly 2

Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband brought home his welcome packet with insurance information in it we immediately flipped to the section about medical nutrition. Having coverage for our daughter’s formula has taken away a major stressor on our family. The financial burden to be able to provide a safe formula for our daughter was all consuming. My husband started to work a second job so that we could afford to keep her safe. Having a FPIES child is expensive, and it is nothing that could have been financially planned for. She has to eat all homemade, organic foods with fresh ingredients. Corn, dairy and soy are her biggest triggers and they are in everything. We cannot run to the store to grab a can of formula, or a carton of milk when we run out. Working with CHOP Homecare for our daughters medical nutrition has changed our life. We are forever grateful and want to advocate for other parents that are struggling like we were.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.