Missouri

My son Alex was born with PKU. He is currently 9 months old and requires 6 ounces of his PKU formula. As he grows this is most likely to increase as we are still trying to figure out his tolerance

I have phenylketonuria and am required to eat low protein foods and drink a formula supplement daily FOR LIFE. Without these items I would have severe mental affects from high Blood protein levels or malnutrition. Due to the pandemic, I

Having medical food coverage would mean that I would not have to worry about double insurance for our daughter, and fighting insurance companies and the billing department at our local children’s hospital about making sure they run the claims through

Earlier this year we experienced what not being able to afford formula & medications or have no insurance coverage is like for so many. Our son Maximus 9 y/o noticed a taste difference in his formula & refused to drink

Meet Adler! He is an amazing little boy that lives in rural Missouri with his Mom and Dad. Adler was diagnosed with PKU shortly after birth. With the help of his Mom, Dad and extended family his PHE levels have