South Carolina

Elliott, Age 6

Elliott was diagnosed with Homocystinuria, or HCU, at 2 years old after suffering a series of blood clots throughout the brain. Once diagnosed, we immediately began treatment, which consists of a very low protein diet, medical formulas, Vitamins B6, B12

Having coverage of these items would be such a relief! Trying to keep up with the strict diet and routine around administering medicine multiple times a day becomes very stressful. On top of that knowing my child can only eat

Annabelle, Age 4

Having medical food coverage would expand our daughter’s ability to try new and different foods. Her diet is supervised by a metabolic team of healthcare professionals at a specialized genetics/metabolism clinic in our state. This is not just for fun or because she wants to eat a certain way, This is to help her grow and develop properly.

I was diagnosed with PKU late, at thirty days. I have some issues, mainly short term memory, due to my late diagnosis. I graduated from high school last year and just finished my first year of college. Without my medical

Ally was diagnosed at ten days with brain growth affecting diet based treatment PKU. She has been a resident of SC since she was six weeks old. Thanks to medical food and strict diet adherence she is a bright, lively,

Our daughter is on my husband’s insurance which we consider to be good medical insurance through UHC. We however did try to contact them about receiving coverage for medical foods without any success. We thankfully are in a state that

South Carolina

Elliott, Age 6

Riverlyn, Age 14 months

Annabelle, Age 4

Reagan

Alexandria, Age 16

Annabelle