Massachusetts

Liam, Age 1

Children without access to formula and medical food struggle to keep their levels stable and deal with a myriad of issues from attention issues to brain damage.

Our Family Story: During the spring and summer 2019, we struggled to understand what our 10-month-old son’s, Nolan, medical conditions were. For several months had been dealing with severe medical issues. He had been to his primary care physician (PCP),

I have two daughters, three years and almost one month. We didn’t have a diagnosis for my oldest for 15 months. Her leg broke walking in the grass from lack of nutrients. When we got a diagnosis and were able

Trying to keep your child healthy and also full without medical food is nearly impossible. The number of times you have to say “no” to a PKU child and the constant worry about running out of foods they can eat, or whether you will be able to afford it

Medically necessary formula has given Caleb back his health, allowed him to continue to advance in sports and school. Not knowing if our family will have enough resources financial to sustain his needs puts stress on all of us but

Mabel was diagnosed with the metabolic disorder, Phenylketonuria (PKU) at birth. She is thriving with the help of her metabolic formula and a very low protein diet. Without a very low protein diet (right now she is allowed a half

My name is Breanna and I am 23 years old. Luckily, I am still on my parents insurance and plan on staying on it until I can no longer. We are lucky that my father gets Blue Cross Blue Shield

Insurance covers formula (so many cans a month) and also covers up to $5000 of food during the fiscal year July-April. If during the few months we cannot order food and we run out is when i have to pay

Joey

Even in Massachusetts, to get coverage for formula and food it is an absolute nightmare collaborating with insurance companies, pharmacies and clinics. I have fear each month that there will be an issue with something and I will not be able to get food or formula for my son because of a paperwork mistake or miscommunication between providers.

Massachusetts

Liam, Age 1

Nolan

Aliza (3) and Vayda (newborn)

Aidan, 9 months

Caleb, Age 13

Mabel, 10 months

Breanna

Tyler

Joey