Colton, Age 6

Colton is almost 7 years old. He was born at 30 weeks and lost 2/3 of his small bowel due to a mid-gut volvulus. He has been on an elemental formula for malabsorption nearly 7 years because of having Short Bowel Syndrome. Colton struggles with oral adversion when eating table food and has been through 4 years of feeding therapy. Thankfully, he can drink Neocate Junior formula to get the medical nutrition he needs to survive. Our Anthem insurance plan does not cover his Neocate at all and we have paid between 1,400-1,800 per month for his supply. It is financially a struggle to pay for an insurance plan each month and then have to pay more out of pocket costs for the nutrition he desperately needs to help him grow and thrive. Our out of pocket costs per month average 3.500-3,900 for insurance coverage and Neocate. We purchase Anthem Blue Cross. Our monthly insurance premium costs $2100 to cover our family of 3. We have no formula/medical food coverage on our plan. It is the Indiana State Medical Association’s group plan that we purchase because my husband is a physician.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.