Arizona

Yazmin, Age 2

Yazmin was four days old when she was diagnosed with mild PKU. She’s been allowed most things except for meat, she still requires formula daily. We work effortlessly daily to try and provide meatless options for our girl which has

Our journey begin in January 2018. Owen was 11 months old and went into anaphylactic shock due to peanut butter. This was just the tip of the iceberg, over the next several months he would be diagnosed with over 20

The Smiths

pkunews

Our family is unique, in that I have PKU as well as our four adopted sons. With no guarantee of insurance coverage, I fear that my children will one day be forced into a situation similar to that they were

Having medical coverage for formula and medical foods would be an enormous relief. Even though Owen is only 12, I have worried since birth about how he will maintain insurance coverage as an adult. How will he be able to

Ian, Age 12

On top of the cost of formula, I have to buy specialty foods amounting to about $200 per month plus regular grocery store items for my son, fresh fruits and vegetables. Plus groceries for rest of family. My son will then age out of coverage per current policies. I worry about what will happen, will he have an occupation that will allow him to manage the cost?

My husband and I opted to pay more out of pocket each month, for our portion of the monthly insurance premium to assure that Addison would have the best coverage offered. Even after we pay our monthly premium, we must

Arizona

Yazmin, Age 2

Owen, Age 2

The Smiths

Owen

Ian, Age 12

Addison, Age 4