James, Age 12

James DeLano is a 12-year-old boy who has lived his life with rare, chronic disease. As a young child, James was diagnosed with an eosinophilic gastrointestinal disease and inborn error of metabolism. Due to the many issues that his conditions

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Caleb, Age 13

Medically necessary formula has given Caleb back his health, allowed him to continue to advance in sports and school. Not knowing if our family will have enough resources financial to sustain his needs puts stress on all of us but

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Ben, Age 5

Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 deductible. We are approximately $15,000 in each year right of out the gate. I believe

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Alexander, Age 23

My son has eosinophilic gastritis and esophagitis. His foods are very limited and he basically lives off chicken breast and rice. Even with vitamins he is too sick and weak to hold a job. We are trying to get him

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Owen, Age 2

Our journey begin in January 2018. Owen was 11 months old and went into anaphylactic shock due to peanut butter. This was just the tip of the iceberg, over the next several months he would be diagnosed with over 20

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Leo, Age 2

My son began drinking Neocate junior at 12 months. It was not covered by our insurance. All formula is excluded from out plan because it is technically an over the counter product. He became tube fed at 16 months and

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Lyndsee, Age 13

My daughter, Lyndsee, was diagnosed in January 2016 with a rare disease, eosinophilic esophagitis. Therefore, she has to live on a prescription formula, Neocate Splash. This is what keeps her alive. She currently has no other safe foods. Her formula

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A. Jay

It would end the never ending anxiety of worrying about whether I can feed my son who has Eosinophilic esophagitis. My insurance will only cover his formula if he doesn’t eat any food. Otherwise, they say it is not medically

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Sarah

Sarah’s family’s inability to pay for medical nutrition is causing deficits which may impair her growth and cognitive development.

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Cade

Cade’s Medical Nutrition costs are so great that the family often asks other family members to buy formula instead of birthday or Christmas gifts.

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The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.