Tommy, Age 19
My son is 100% IV nutrition/hydration dependent. Without insurance covering his very expensive weekly deliveries of life sustaining supplies, I do not know how we would be able to pay for it all. Without nutrition/hydration, my son would not survive since he’s unable to take anything orally or via a feeding tube. Coverage for medical nutrition is an absolute must in order for survival!
Between the insurance through Tommy’s dad’s job & Medicaid, there are no out-of-pocket cost for IV nutrition. We are concerned about the future of paying for it when he ages out of his dad’s insurance (age 26).