My husband and I had to declare bankruptcy this past year because the medical bills and formula were so costly. Our former HMO did not cover her medically necessary formula at a cost to us of $1,500 per month just
Read moreEmmalyn, Age 10
Emmalyn graced us with her presence 10 and 1/2 years ago at 35 weeks gestation weighing in at 5 lbs, 7 ozs. and 18 inches long. Our beautiful baby girl was so tiny and perfect, and I couldn’t believe how
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Riverlyn, Age 14 months
Having coverage of these items would be such a relief! Trying to keep up with the strict diet and routine around administering medicine multiple times a day becomes very stressful. On top of that knowing my child can only eat
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Ishaq, Age 5
Employer plan claims that metabolic formula is considered food supplement / baby formula and is excluded from plan.
Read moreFloyd, Age 2
I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, EoE, and FPIES. To say that feeding them has been a challenge is more than an understatement. The true
Read moreBrielle, Age 12
There are a lot of difficulties that come with having a metabolic disorder. Our society revolves around food, and daily accommodations/restrictions must be figured out for family meals, social gatherings, school functions, etc. My daughter is hungry often because of
Read moreJosephine, Age 6
If we had coverage for Josephine’s medical nutrition it would be such a blessing to not only Josephine but to our family. Because we pay so much in medical needs it has prevented us from spending more on foods that
Read moreBraxton, Age 1
Not having to worry about paying for medical nutrition would be a huge relief to our family. NO family should have to pay for these things, or should at least have the support of their insurance company! This is a
Read moreBrooks, Age 9 monhts
My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He was also diagnosed with a cows milk protein and soy protein allergy, then
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Audrey, Age 12
Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it affects my daughter’s growth and development is critical. For 12 years, we have cycled through and fought with
Read moreLily Jo, Age 6
I just want Lily Jo to be able go to school and eat lunch like the rest of the children. I want to know that once again someone doesn’t understand or miss read the list of instructions for the food
Read moreEliot, Age 11
This is Eliot and he has PKU. With formula, low-protein foods and an incredible amount of discipline on his part, Eliot is a happy, healthy, thriving 11-year-old. He is a talented swimmer too, having achieved a Junior Olympics time standard
Read moreRonan, Age 2
My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure to thrive for the first month of his life. Once I realized at
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