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Read moreElliott, Age 6
Elliott was diagnosed with Homocystinuria, or HCU, at 2 years old after suffering a series of blood clots throughout the brain. Once diagnosed, we immediately began treatment, which consists of a very low protein diet, medical formulas, Vitamins B6, B12
Read moreAshlynn, Age 5
Having coverage for medical nutrition would mean the world to our family. Instead of feeling like I have to creatively figure out how to buy normal foods at the store I could order more freely and feel more confident. My
Read moreJacob, Age 6
Six years ago my son, Jacob, was born with a rare metabolic condition that requires detailed, daily medical care, including the use of nutritional supplements. These nutritional supplements are highly specific to his condition and are essential to his thriving.
Read moreJessica, Kacey, and Hailey
Having coverage for medical nutrition would mean everything to our daughters. They have had to take jobs because of the insurance alone. One will be coming off of our insurance in two years and she is already worried about what
Read moreCallaway, Age 1
Our daughter Callaway requires specialized formula every single day to stay alive!! While our insurance covers a portion of the formula, it does not cover all of it and each month we must get on the phone with our insurance
Read moreT, Age 5
By the time my son was properly diagnosed, he was extremely sick and we were relieved to find an elemental formula that could provide calories and nutrition he so desperately needed. However, we were stunned by the cost on top of already steep medical bills. The stress of feeding him was enormous.
Read moreAlexander, Age 9 months
My son Alex was born with PKU. He is currently 9 months old and requires 6 ounces of his PKU formula. As he grows this is most likely to increase as we are still trying to figure out his tolerance
Read moreMayes, Age 4
Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was labeled as failure to thrive, experienced daily pain, and yet, lived each day with
Read moreJoseph
Medical nutrition, including my medical drink, has allowed me to function for 26 years in the construction industry as a Project Manager and Estimator as well. This coverage would allow me to continue to function in this capacity and not worry about my health impacting my ability to provide for my family.
Read moreSadie, Age 12
My daughter’s formula is currently covered. This formula allows my daughter’s brain and body to remain healthy. It allows her to thrive in school and in the activities she is interested in. Sadie even competes in rodeo! She is an
Read moreArmando, Age 2
My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His first endoscopy was at one year old and confirmed an EoE diagnosis through biopsies. He relies
Read moreTommy, Age 19
My son is 100% IV nutrition/hydration dependent. Without insurance covering his very expensive weekly deliveries of life sustaining supplies, I do not know how we would be able to pay for it all. Without nutrition/hydration, my son would not survive
Read moreBryleigh, Age 11
My husband and I had to declare bankruptcy this past year because the medical bills and formula were so costly. Our former HMO did not cover her medically necessary formula at a cost to us of $1,500 per month just
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