Florida

Armando, Age 2

My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His first endoscopy was at one year old and confirmed an EoE diagnosis through biopsies. He relies

My son’s food allergies were so severe, he was reacting to the food I was eating through breastfeeding. He had blood in his stool for several months and stopped gaining weight until he was diagnosed and prescribed an elemental medical

Evan, Age 8

I am aware that we are some of the lucky ones in that we have great medical coverage via TRICARE. Others should be afforded the same opportunity for coverage

Danielle, Age 3

At 1.5 years old she weighed 14 pounds and had g-tube surgery. She’s 3 now and has never eaten food.

Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue breastfeeding my son. This has been a sacrifice of not only time (as a full time working mother) but also limiting my

Hi, I am only 5 years old now and my parents struggle to provide the right food for me for my special diet. Coverage would mean now and when I get older I wouldnt have to pay for my food

Remington, Age 18

pkunews

Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was worsening his condition. By taking so many foods out of his diet, he was at risk

Stephanie, Florida Dietitian

pkunews

The biggest frustration as a provider is knowing that many patients are not receiving the care they need to manage their conditions. The second biggest frustration is that even when an insurance “covers” medical foods, it may still not be obtainable since many ‘in-network’ distributors will not supply the needed products.

My daughter was diagnosed with a genetic inborn error of protein metabolism at 15 months of age. Since that time, our daily life has been dominated by an acute awareness of the critical importance of Sasha’s nutrition (and the incredibly

We are a poor family. Aside from food stamps we don’t have anything else to help with regular food let alone medical food. over half of our money goes towards expensive foods in stores and trying to get as much

Kathy, Age 55

I’m almost 55 with PKU need I say more… okay was a sample for Kuvan and Lanephex. Amount others like 1st Pku camps!

The average child eats what everyone else eats and thrives based upon a combination of nutrition, exercise and genetics. While we can not control our genetic make-up, most of us can “eat right, exercise and enjoy good health” – but

Florida

Armando, Age 2

Reynaldo

Evan, Age 8

Danielle, Age 3

Benjamin, Age 1

Saif, Age 5

Remington, Age 18

Stephanie, Florida Dietitian

Sasha, Age 11

Terry, 4

Kathy, Age 55

Vincent