Levi, Age 2

His medical formula/milk costs about $130 a can. He goes through about 5 cans a month. Thankfully that’s currently covered under Medicaid. The other $180 is buying special low protein foods to live within his PKU prescribed diet. There is very little overlap with the other foods we regularly buy as a family that can be shared with him. I shudder to think what happens if/when we have to change insurers. Or what happens as he gets older and has a teenage boy appetite. Or becomes an adult and has to assume the huge burden of his own insurance/food bill. Having equality in medical food coverage would open a future for my son that currently seems so limited or pointed. It would relieve a tremendous financial weight for us now, and him later.