Hello, I am the mother of a ten-month-old phenylketonuria patient. Having more help to get instant needs would be amazing. With having it three kids and only the youngest has PKU it has been hard to try and get just his food. One small container of yogurt is $2.50 at our local store and for a cup of his cheese at the local store is $7. Most of his food I have to drive over an hour to get due to the fact that it has to be a vegan with no added protein. Plus WIC will only cover half of his formula for the month and its ranges from $30-$40 every 4 days per can. We get $400 a month for food but it can only be ordered through 1 distributor.
Patients & Providers for Medical Nutrition Equity
Working to secure access to medically-necessary nutrition for all.