My son has classic PKU and his food options are very limited. We rely heavily on medical foods to fulfill his dietary needs. It is a struggle to have the insurance company provide coverage for the medical formula and foods. I have a high deductible plan and paying out of pocket for these food necessities puts a lot of stress on the family to provide more options for food choices for my son.
My insurance covers and recognizes the cost as part of the deductible, but we are responsible for 100% of the out of pocket cost of all medical nutrition until we reach our out of pocket max.
Patients & Providers for Medical Nutrition Equity
Working to secure access to medically-necessary nutrition for all.