Sarah

At first my dad’s Connecticut Carpenters insurance refused to cover my condition so he took a job with the Milford Board of Education and I have had excellent coverage ever since. I can only imagine how different life would have

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Isaac (13) and Caleb (11)

Over the course of five years, our out-of-pocket expenses for medical nutrition for two children was approximately $85,000. Add to it the higher cost of specialty food that they had to eat because it was medically necessary due to ingredient

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Rylan, Age 10

Being able to access medical formula is absolutely necessary for my family. My 10 year old son gets 1/3 of his nutrition from Neocate Splash at the moment. We originally tried the top six elimination diet but unfortunately my son’s

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Sawyer, Age 2

We spent a long time working with my son’s doctors to make insurance understand how much he needed hypoallergenic formula. He was officially diagnosed failure to thrive at 2 months. He was diagnosed with significant GERD at 4 months. He

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Katherine, Age 8

Katherine was only 2 months old when we knew something wasn’t right. It took us 8 more months to figure out what was going on. No baby formulas would work for her. Not regular formula, not soy formula, not even

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Kendall

My name is Kendall Temple Jr. and was born in 1966. I was one of every first people diagnosed with PKU in the state of Maryland. There was very little know about how to treat PKU back then and only

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Kurt

Having coverage for medical nutrition would mean I would have access to life-saving foods and formulas without ever having a lapse in coverage. I wouldn’t have to worry about my insurance deciding what’s best for my treatment. It means I

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Yazmin, Age 2

Yazmin was four days old when she was diagnosed with mild PKU. She’s been allowed most things except for meat, she still requires formula daily. We work effortlessly daily to try and provide meatless options for our girl which has

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The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.