Sarah's family's inability to pay for medical nutrition is causing deficits which may impair her growth and cognitive development.
Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was ...
Medical nutrition coverage would make an enormous difference to our entire family. We spent years in school to provide a good living ...
I have three children, my six-year-old twin daughters Lucy and Lily and my three-year-old son Lucas. Lucy and Lucas were diagnosed at ...
When our firstborn was just 7 days old, we received a call to rush him to the hospital. He had tested positive for PKU. We, including ...
My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets ...
My pasta costs almost 10 times more than pasta bought at a local grocery store. My medical food should be looked at as medicine, not food. It is a requirement, not a choice.
Having medical nutrition covered by the government would make life a lot more simple. I would have less stress and more peace of mind ...
Jane’s formula cost out of pocket for EEN was approximately $300 per month. Her team of health care providers attempted to obtain insurance coverage but was denied even after appeals were attempted.
Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with ...
It is really hard to have a child with a metabolic disorder. I pay over $600.00 per month for insurance coverage, It was prior to Obama Care $1200.00 per month. This does not leave me much funds left over to buy medical Nutrition food, my insurance covers the formula which is so expensive. There has […]
It is really hard to have a child with a metabolic disorder. I pay over $600.00 per month for insurance coverage, It was prior to ...
Earlier this year we experienced what not being able to afford formula & medications or have no insurance coverage is like for so ...
Our clinic's desire to bring the best possible care and outcomes to our patients is directly related to their ability to get necessary medical foods. Many who are not able to get medical foods are not able to follow their restricted diets, leading to poor outcomes and disease associated morbidities.
Medical food practice affects our practice in several ways. First, and foremost, our desire to bring the best possible care and ...
So far Mark's medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never know year after year if it will be or not and January is always stressful not knowing if will be or not.
So far Mark’s medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never ...
I recently became ineligible for the Medicaid insurance I was on, I make just a little over the cap for income to be eligible. While I ...
The formula is very expensive!...My Grand-daughter and her husband both work and with all the bills cannot afford the formula (which is relevant in this disease)
The formula is very expensive!…My Grand-daughter and her husband both work and with all the bills cannot afford the formula ...
Passing this law would mean a lot more money to go around. Better health for me which makes me better for my family.
Passing this law would mean a lot more money to go around. Better health for me which makes me better for my ...
My daughter was born with PKU, a rare metabolic disorder. Right now, we are lucky to have insurance cover her formula and medical ...
Our insurance covered the medical beverage for one year and then stopped. This was so terrible because we had no notice and the ...
Better coverage for my son would alleviate the concerns about not being able to afford the medicine he needs .
Insurance info: Our ...
Kennedy was diagnosed with PKU at 5 days old. Left untreated this disorder can lead to serious brain damage. While we are very ...
It is extremely difficult to provide my child with enough food to keep him healthy by keeping his blood phenylalanine levels at recommended levels and also keep him from being hungry.
We are a low income family. I am a single mother and I provide school with low protein lunches 5 days a week. It is extremely ...
My daughter has a milder form of PKU and therefore does not need as much formula to live a healthy life. However, as she gets older ...
Looking at this brother and sister pair, you don’t see anything besides two happy kids. Thankfully, Zay and Ellie are happy and ...
Insurance covers my daughters medical formula but doesn’t cover her medical foods. If my daughters medical foods were covered it ...
As all parents who experience it, we were overwhelmed once we got the call, at 5 days of age, that our daughter Maeve had been ...
For our family, the most meaningful part of medical nutrition coverage would be hope and confidence for the future. We have coverage ...
Our family is unique, in that I have PKU as well as our four adopted sons. With no guarantee of insurance coverage, I fear that my ...