Medical nutrition coverage has significantly reduced the cost and strain on our family’s income for our daughter’s food. ...
Food is the most important thing to any mother who has an infant. While most mothers who have a two week old are just making sure they ...
Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue ...
What would having had coverage for medical nutrition meant to me/my family? It feels like an insurmountable task to even try to answer ...
Isabelle has Classic PKU. She is 2.5 years old and can have 3 grams of natural protein per day. For context, one 8 oz glass of milk ...
When our daughter was born, our two employer-provided insurances refused to cover her condition.
When our daughter was born, our two employer-provided insurances refused to cover her condition. One insurance was through the Ct. ...
My pasta costs almost 10 times more than pasta bought at a local grocery store. My medical food should be looked at as medicine, not food. It is a requirement, not a choice.
Having medical nutrition covered by the government would make life a lot more simple. I would have less stress and more peace of mind ...
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
James DeLano is a 12-year-old boy who has lived his life with rare, chronic disease. As a young child, James was diagnosed with an ...
Liam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried ...
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
Marcella was diagnosed with multiple food allergies in 2016. She is allergic to soy, peanuts, tree nuts,fish, shellfish, along with a ...
My mother has worked as many as 5 jobs concurrently to maintain employer-provided insurance and has CONSTANTLY fought to keep me on a ...
Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergric to upwards of 40 foods. Even at the current ...
Having three children with PKU is an unbelievable blessing. We had never heard of PKU before Zach was born and just a few days after ...
The formula is very expensive!...My Grand-daughter and her husband both work and with all the bills cannot afford the formula (which is relevant in this disease)
The formula is very expensive!…My Grand-daughter and her husband both work and with all the bills cannot afford the formula ...
Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...
When our firstborn was just 7 days old, we received a call to rush him to the hospital. He had tested positive for PKU. We, including ...
My greatest worries are what happens if my husband’s job comes to an end and we can’t afford the medical formula/foods or can’t afford insurance. More importantly, what happens when my son has to start taking care of these expenses himself.
The cost of food and formula limits many things besides medical foods themselves.
Because of the high cost of formula and food, ...
These medical foods and formulas are not “optional” or “nice to have” for those of us with PKU andsimilar ...
I want to introduce you to my eight-year-old daughter, Claire. At first glance Claire appears to be a normal 2nd grader. She loves ...
Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
Our beautiful baby boy Aidan was born last July and shortly thereafter diagnosed with PKU. Once we learned he could grow and develop ...
When Joe was 3 weeks old, coverage of his PKU medical formula was denied by our employer provided insurance. We couldn’t believe ...
Passing this law would mean a lot more money to go around. Better health for me which makes me better for my family.
Passing this law would mean a lot more money to go around. Better health for me which makes me better for my ...