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Owen

Arizona · Phenylketonuria (PKU)
Annual cost: $6000

Having medical coverage for formula and medical foods would be an enormous relief. Even though Owen is only 12, I have worried since ...


Gian, Age 2

North Carolina · Phenylketonuria (PKU)
Annual cost: $4800

I am currently a foster mom to a 2 year old with PKU. We live in the state of NC where medical food is not covered. His food is very ...


Jeff

Maple syrup urine disease · Pennsylvania
Annual cost: $2700

We purchase medical insurance from employer. Employer is self insured so not subject to the Pennsylvania Medical Foods Act. MSUD ...


Danielle, Age 3

Florida · SBS
Annual cost: $12000

Our beautiful happy and energetic three year old daughter Danielle was born at 35 weeks New Year’s Day 2016. She was diagnosed at ...


Evan, Age 8

Florida · Maple syrup urine disease

Evan was born with MSUD and we were lucky that TRICARE covered his formula and supplements until his transplant. At the time, they did ...

Asher, 4

Illinois · Phenylketonuria (PKU)
Annual cost: $1800

Asher is my happy, smart, funny, rambunctious four year old. He loves to play with tractors, his sister, swim, and eat! He loves ...


Ezra, Age 3

Oklahoma
Annual cost: $4200

The formula is very expensive!…My Grand-daughter and her husband both work and with all the bills cannot afford the formula ...

Chelsie

Phenylketonuria (PKU) · Utah
Annual cost: $24000

Coverage for medical nutrition would be a huge blessing to me and my family, and also many other individuals with PKU especially ...

Draegen, Age 18

Phenylketonuria (PKU) · Texas
Annual cost: $6000

When my son, Draegen, was younger, he was on Medicaid. It covered his formula, but only a very specific kind. He ended up burnt out on ...

Elsie, Nearly 2

FPIES · Pennsylvania

Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...

Tessa

EOSINOPHILIC DISORDERS · Utah

When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...


Jane, Age 7

CROHN'S · Illinois
Annual cost: $3960

Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with ...


Evan, Age 13

New Jersey · Phenylketonuria (PKU)
Annual cost: $3600

We are a low income family. I am a single mother and I provide school with low protein lunches 5 days a week. It is extremely ...

Lincoln, Age 2

California · FPIES
Annual cost: $3600

Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.