My name is Renee. I am recently married in August 2017. I am currently on pre-con trying for our first child. My levels have been ...
At 1.5 years old she weighed 14 pounds and had g-tube surgery. She's 3 now and has never eaten food.
Our beautiful happy and energetic three year old daughter Danielle was born at 35 weeks New Year’s Day 2016. She was diagnosed at ...
I have two boys with Phenylketonuria, ages 5 and 3. We moved recently from California to Washington state. In California we had state ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
Asher is my happy, smart, funny, rambunctious four year old. He loves to play with tractors, his sister, swim, and eat! He loves ...
Isabelle has Classic PKU. She is 2.5 years old and can have 3 grams of natural protein per day. For context, one 8 oz glass of milk ...
Having medical coverage for formula and medical foods would be an enormous relief. Even though Owen is only 12, I have worried since ...
Our insurance covered the medical beverage for one year and then stopped. This was so terrible because we had no notice and the ...
Medical coverage for our family will mean less time fighting the insurance for coverage. They decide when and how they are going to ...
On top of the cost of formula, I have to buy specialty foods amounting to about $200 per month plus regular grocery store items for my son, fresh fruits and vegetables. Plus groceries for rest of family. My son will then age out of coverage per current policies. I worry about what will happen, will he have an occupation that will allow him to manage the cost?
Having better coverage will will certainly lower our costs. To have to pay escalating insurance premiums plus the cost of formula and ...
Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 ...
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
It is really hard to have a child with a metabolic disorder. I pay over $600.00 per month for insurance coverage, It was prior to Obama Care $1200.00 per month. This does not leave me much funds left over to buy medical Nutrition food, my insurance covers the formula which is so expensive. There has […]
It is really hard to have a child with a metabolic disorder. I pay over $600.00 per month for insurance coverage, It was prior to ...
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
My daughter was diagnosed with a genetic inborn error of protein metabolism at 15 months of age. Since that time, our daily life has ...
It would mean so much to have the medical nutrition equity act passed. I have a diagnosis of homocystinuria which was discovered very ...
Jane’s formula cost out of pocket for EEN was approximately $300 per month. Her team of health care providers attempted to obtain insurance coverage but was denied even after appeals were attempted.
Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
Looking at this brother and sister pair, you don’t see anything besides two happy kids. Thankfully, Zay and Ellie are happy and ...
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food.
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food. My insurer will ...
For our family, the most meaningful part of medical nutrition coverage would be hope and confidence for the future. We have coverage ...
Food is the most important thing to any mother who has an infant. While most mothers who have a two week old are just making sure they ...
When I was eligible for the Affordable Care Act, I “made too much money” since child support is added in for income for DE ...