When Krew turns 6 and is no longer covered by the state metabolic program, we will have to seriously consider moving to a state with better coverage. It would break our hearts to take him and our other children away from home. Away from family and close friends. But unfortunately, even with a great paying job, we will not be able to afford all things necessary for living with PKU.
Patients & Providers for Medical Nutrition Equity
Working to secure access to medically-necessary nutrition for all.