The formula is very expensive!…My Grand-daughter and her husband both work and with all the bills cannot afford the formula (which is relevant in this disease)…Please everyone who reads this..sign the paper for our government to help with this !…these kids and adults will not ever get to eat some of the foods we eat…they will basically be vegetarians all of their life!…Please, please, help us with this….thanking you very much..
- Elliot, Age 2
- Adysen, Age 11