We are fortunate that in the State of Ohio our daughter’s medical formula is covered. Because she is a responder to Kuvan, we have been able to rely less on specialty low-phenylalanine foods but do still purchase low protein pasta. We also still need to purchase gluten free items in the grocery store which definitely cost more than the “regular” version of these foods. Having medical nutrition coverage would be such a relief, not only for us now, but knowing that our daughter will not struggle to get the foods that she needs to be healthy.
- Emma, Age 10
- Robert, Age 11