Patients & Providers for Medical Nutrition Equity

Brynnslee and Brekelle

This precious picture was taken after the birth of my 2nd who also was diagnosed with PKU right after birth. It symbolizes the bond that these 2 sisters will always have..going through life facing all the food and medical issues

My story is a sad one. I am a parent of a PKU individual. My son was born June 17, 1985, diagnosed with PKU at 3 weeks of age. He was immediately started on a PKU formula and progressed to

My son is currently ten years old. When he was first born, his father’s health insurance through work wouldn’t cover this low protein foods. Thankfully, the formula only was covered through a program. I met a young family of a

I have two daughters. Only the younger one has PKU. We struggle to find foods that Isabel can eat. Medical foods are incredibly expensive, and our insurance plan, which is otherwise good, is exempt from state mandates which should provide