Lena, Age 2

We spend every day planning and preparing. Not only what our daughter will eat today and in the week ahead but also for her future. Her specialty foods and formula will be a life long cost and we worry about

Read more

Jeremiah, Age 7

Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old son. Jeremiah was diagnosed with Eosinophilic Esophagitis (EoE) back in June 2013. Prior to his diagnosis, he was very sick

Read more

Alexander, Age 3

Xander was diagnosed with MSUD at 4 days of life. We were in a hospital that did not know how to treat, was not prepared to treat, and mistreated the disease. At 11 days of life, the geneticist finally reached

Read more

Evan, Age 8

I am aware that we are some of the lucky ones in that we have great medical coverage via TRICARE. Others should be afforded the same opportunity for coverage

Read more

Danielle, Age 3

At 1.5 years old she weighed 14 pounds and had g-tube surgery. She’s 3 now and has never eaten food.

Read more
The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.