Test COnditions

Isabel

I have two daughters. Only the younger one has PKU. We struggle to find foods that Isabel can eat. Medical…

Declan

My son is currently ten years old. When he was first born, his father's health insurance through work wouldn't cover…

Jordan

My story is a sad one. I am a parent of a PKU individual. My son was born June 17,…

Brynnslee and Brekelle

This precious picture was taken after the birth of my 2nd who also was diagnosed with PKU right after birth.…

Christopher

I recently became ineligible for the Medicaid insurance I was on, I make just a little over the cap for…

Audrina, Age 8

The metabolic disorder itself is such a challenge in learning and dealing with and then to have to worry about the funds to get the food, formula and medical care she needs is another level of added stress.

Riley

My 3 year old daughter has classical PKU, with coverage for medical nutrition she would be able to eat more…

Vincent

The average child eats what everyone else eats and thrives based upon a combination of nutrition, exercise and genetics. While…

Ashlynn

My insurance provides coverage of Ashlynn's PKU metabolic formula, ONLY after we have met her deductible. They cover NO medical…

Evan, Age 13

It is extremely difficult to provide my child with enough food to keep him healthy by keeping his blood phenylalanine levels at recommended levels and also keep him from being hungry.

Zoey

For now while she is a baby our insurance covers some of her formula, but none of her medically necessary…

Pamela

It would mean so much to have the medical nutrition equity act passed. I have a diagnosis of homocystinuria which…

Annabelle

Our daughter is on my husband’s insurance which we consider to be good medical insurance through UHC. We however did…

Juliana

It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food.

Jessica

Our daughter has even told her dad and I that she thinks at this point, she will choose not to have children due to the cost of her medical foods!

Les

These medical foods and formulas are not "optional" or "nice to have" for those of us with PKU andsimilar metabolic…

John

I have avoided purchasing the medical food I needed because we can’t afford the food.