Grayson needs to take an injection of a specialty compounded form of B12 called Hydroxocobalamin. Our insurance through my husbands employment and Medicaid do not cover compounded medication. Without this medication he would suffer from seizures, brain atrophy, vision loss,
Read moreMonth: March 2021
Sienna, Age 22
When my daughter Sienna was 3 months old she was diagnosed with a rare metabolic disease called mma-cblc. This disease prevents her from processing b-12 correctly or breaking down protein correctly. She was in the NICU & very critical before
Read moreLouie, Age 3
Louie was diagnosed when he was one week old. We were told to expect motor delays, intellectual disability, and vision loss, assuming his health was well-controlled. We were using the standard recommended dose for his injection of compounded b12 until
Read moreElijah, Age 7
Insurance won’t cover my son’s formula unless he’s tube-fed.
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