We adopted Lisa last year. Prior to that she was in Florida. Due to the low amount covered in Florida Lisa was on a very limited diet. Once we brought Lisa home to Indiana we had no coverage for food.
Read moreMonth: October 2018
Leo, Age 2
My son began drinking Neocate junior at 12 months. It was not covered by our insurance. All formula is excluded from out plan because it is technically an over the counter product. He became tube fed at 16 months and
Read moreGarrett, Age 9
When Garrett was born at 9 lbs 4 oz, we could not have been more thrilled to have a such a fat, happy baby! When we received the call two weeks later that he tested positive for PKU, we were
Read moreLucy and Lucas, Ages 6 and 3
I have three children, my six-year-old twin daughters Lucy and Lily and my three-year-old son Lucas. Lucy and Lucas were diagnosed at birth with PKU, a rare, inherited metabolic disorder for which there is currently no cure. Their livers are
Read more