Society for Inherited Metabolic Disorders

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Propionic Acidemia Foundation

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Pediatric IBD Foundation

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Organic Acidemia Association

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Oley Foundation

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North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

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Network of Tyrosinemia Advocates (NOTA)

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Nationwide Children’s Hospital

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National Urea Cycle Disorders Foundation

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National PKU News

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National PKU Alliance, Inc.

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National Organization for Rare Disorders (NORD)

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March of Dimes

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Maple Syrup Urine Disease Family Support Group

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International Foundation for Functional Gastrointestinal Disorders (IFFGD)

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Genetic Metabolic Dietitians International (GMDI)

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FOD (Fatty Oxidation Disorders) Family Support Group

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EveryLife Foundation for Rare Diseases

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Campaign Urging Research for Eosinophilic Disease (CURED)

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Crohn’s & Colitis Foundation

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Children’s National Health System

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Children’s MAGIC US

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Children’s Medical Nutrition Alliance

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Children’s Hospital Colorado

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Children’s Hospital at Dartmouth

Coalition Members

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