All posts by: Zap Bot

T, Age 5

EOSINOPHILIC DISORDERS · FPIES · Texas
Annual cost: $8400

My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...

Mayes, Age 4

EOSINOPHILIC DISORDERS · Texas
Annual cost: $7200

Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...

Joseph

New York · Phenylketonuria (PKU)
Annual cost: $4200

I am a voting 46 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...

Gianna

FPIES · Michigan
Annual cost: $115212

Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...

Brittany

Maine · Phenylketonuria (PKU)

The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am ...

Kris

California · Phenylketonuria (PKU)

Having access to low protein nutrition and food is essential to my overall health but primarily my brain and cognitive function. ...

Ishaq, Age 5

3-Hydroxy-3-methyglutaric aciduria · Maryland
Annual cost: $3600

Not only helps us but all other families who need to provide safe calories for our children.  Employer plan claims that metabolic ...

Floyd, Age 2

CROHN'S · Georgia
Annual cost: $6000

I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, ...

Brooks, Age 9 monhts

FPIES · Illinois
Annual cost: $600

My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.