Having coverage for medical nutrition would mean the world to our family. Instead of feeling like I have to creatively figure out how ...
Six years ago my son, Jacob, was born with a rare metabolic condition that requires detailed, daily medical care, including the use of ...
Having coverage for medical nutrition would mean everything to our daughters. They have had to take jobs because of the insurance ...
Our daughter Callaway requires specialized formula every single day to stay alive!! While our insurance covers a portion of the ...
By the time my son was properly diagnosed, he was extremely sick and we were relieved to find an elemental formula that could provide calories and nutrition he so desperately needed. However, we were stunned by the cost on top of already steep medical bills. The stress of feeding him was enormous.
My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...
Medical foods coverage would allow my son, who has Complex 1 Deficiency and Pyruvate Dehydrogenase Deficiency, to use his Social ...
My son Alex was born with PKU. He is currently 9 months old and requires 6 ounces of his PKU formula. As he grows this is most likely ...
Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...
I am a voting 46 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...
Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...
My daughter’s formula is currently covered. This formula allows my daughter’s brain and body to remain healthy. It allows her to ...
My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His ...
My son is 100% IV nutrition/hydration dependent. Without insurance covering his very expensive weekly deliveries of life sustaining ...
My husband and I had to declare bankruptcy this past year because the medical bills and formula were so costly. Our former HMO did not ...
Emmalyn graced us with her presence 10 and 1/2 years ago at 35 weeks gestation weighing in at 5 lbs, 7 ozs. and 18 inches long. Our ...
Having coverage for medical nutrition through TRICARE has meant everything to me and my family. 2 of my brothers and I were ...
My daughter, Brittany, was born with PKU and we were able to provide her with the nutritional products that she needed to avoid significant brain development problems. Unfortunately, that is not the case for all children and adults in the US.
The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am ...
Having coverage of these items would be such a relief! Trying to keep up with the strict diet and routine around administering ...
Having access to low protein nutrition and food is essential to my overall health but primarily my brain and cognitive function. ...
Employer plan claims that metabolic formula is considered food supplement / baby formula and is excluded from plan.
Not only helps us but all other families who need to provide safe calories for our children. Employer plan claims that metabolic ...
I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, ...
There are a lot of difficulties that come with having a metabolic disorder. Our society revolves around food, and daily ...
If we had coverage for Josephine’s medical nutrition it would be such a blessing to not only Josephine but to our family. ...
Not having to worry about paying for medical nutrition would be a huge relief to our family. NO family should have to pay for these ...
My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...