All posts by: Zap Bot

T, Age 5

EOSINOPHILIC DISORDERS · FPIES · Texas
Annual cost: $8400

My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...

Mayes, Age 4

EOSINOPHILIC DISORDERS · Texas
Annual cost: $7200

Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...

Joseph

New York · Phenylketonuria (PKU)
Annual cost: $4200

I am a voting 46 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...

Gianna

FPIES · Michigan
Annual cost: $115212

Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...

Brittany

Maine · Phenylketonuria (PKU)

The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am ...

Kris

California · Phenylketonuria (PKU)

Having access to low protein nutrition and food is essential to my overall health but primarily my brain and cognitive function. ...

Ishaq, Age 5

3-Hydroxy-3-methyglutaric aciduria · Maryland
Annual cost: $3600

Not only helps us but all other families who need to provide safe calories for our children.  Employer plan claims that metabolic ...

Floyd, Age 2

CROHN'S · Georgia
Annual cost: $6000

I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, ...

Brooks, Age 9 monhts

FPIES · Illinois
Annual cost: $600

My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...