Patients & Providers for Medical Nutrition Equity

Pamela

It would mean so much to have the medical nutrition equity act passed. I have a diagnosis of homocystinuria which was discovered very late in life. I have suffered from strokes and blood clots in my lungs because of it.

For now while she is a baby our insurance covers some of her formula, but none of her medically necessary supplements and none of the formula or low protein food when she is older. She will never have chic-fil-a with

Evan, Age 13

It is extremely difficult to provide my child with enough food to keep him healthy by keeping his blood phenylalanine levels at recommended levels and also keep him from being hungry.

My insurance provides coverage of Ashlynn’s PKU metabolic formula, ONLY after we have met her deductible. They cover NO medical foods for her which are extremely expensive. They do not fully cover her mandatory blood tests, only partial until we

The average child eats what everyone else eats and thrives based upon a combination of nutrition, exercise and genetics. While we can not control our genetic make-up, most of us can “eat right, exercise and enjoy good health” – but

My 3 year old daughter has classical PKU, with coverage for medical nutrition she would be able to eat more food instead of being hungry so often. Without medical nutrition she is very limited to the foods, she can eat,

Day:

Pamela

Zoey

Evan, Age 13

Ashlynn

Vincent

Riley